Time to do it all over again

A lot of time has passed since my last blog and I have some bad news. This disk problem I have been having is not a minor issue but a major one. Turns out the disk pushing on my nerve is the same size as it was in 2015 when I had it operated on. I’m in no shape to attempt this walk. I am currently controlling the lower back pain with strong medication which is working well but I can’t be on it forever. I am also experiencing a lot of weakness in my legs and my balance is harder to control. The same thing happened in 2015. All of my training has stopped and I am only swimming at the moment. I have only one choice left if I want to walk this trail and that is have a operation. The same operation I had back in 2015. This is the operation that originally inspired me to create Walking for Ataxia. This is the operation where it took me 6 months to get my walking back to normal. This is the operation where I was in agony for months. So I am not looking forward to it. At all. I realise that this is just another challenge in my way and it is something I have to do to even be able to attempt this mammoth of a adventure.

It was a hard decision to make but a easy one. If I still attempted the trail I wouldn’t of even come close to finishing. I fought this thing as much as I could but in the end this is the wisest decision. When I told everybody about my decision I felt horrible. I felt like I had let everyone down. It killed me for weeks and still does a little bit but the encouragement I received from family and friends was unexpected. People who I had no idea were following where sending me private messages telling me I made the right decision and to keep my head up. This was a huge boost and it is something that has lifted my spirits tremendously.  Because of this I will be making changes to my walk but they will be a surprise which I will let you know about soon.

Apart from the decision to have the operation it has been business as usual. I held a presentation to about 50 Lions club members. I told them about everything. From the first signs to the decision to have the operation. After hearing my story they have jumped on board! They are pledging around $1500 and in return I will be wearing their logo and getting some of their members out walking with me. It was a blast telling them about Walking for Ataxia but it was also very fulfilling creating awareness about FA at the same time. I am also heading to Melbourne this week to take part in the 12th annual FA scientific symposium. This will be a great opportunity to meet other FA sufferers and learn a lot more about FA. To say I am excited is a understatement. I will have plenty to talk about next blog that’s for sure!!

Thanks for all the support!!


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